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Securing Europe’s competitiveness in R&D for people living with rare diseases: Key takeaways from Rare Diseases Forum 2024
Background Set against the backdrop of the Belgian Presidency of the Council of the EU, Rare Diseases Forum came to Brussels this year on April 16th, bringing together a wide range of stakeholders to discuss a European rare disease Action Plan that aims to help Europe secure competitiveness in R&D for rare disease therapies. Although […]
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How rare is rare? Quantifying the hidden population living with rare genetic diseases using genetic databases
Rare Disease Day is fast approaching, with a programme of activity being lined up, through international initiatives and country-specific programmes, in the UK for example to highlight challenges, raise awareness and generate change for the 300 million people worldwide living with one or more of the roughly 8,000 known rare diseases, as well as their […]
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Join us at upcoming conferences to discuss the latest findings in the epidemiology of rare diseases.
It’s a well-established truism that rare diseases, whilst rare at the individual disease level, are collectively quite common, with some 300 million people worldwide living with a rare disease. However, are rare diseases actually as rare at the individual disease level as current estimates suggest – what could be the extent of the “hidden population”? […]
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Impactability Modelling for Population Health Management
We’re looking forward to attending the NHS Population Health conference on 2nd November which will bring together NHS professionals to discuss PHM strategies aimed at addressing the many pressing issues facing the NHS. Our COO and co-founder Laura Webber, will be giving a talk on Population Health Management of non-communicable diseases: measuring the impact of […]
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Everything in moderation: the health and economic benefits of reducing salt consumption in the UK
We all know that too much salt is bad for our health! Consuming too much salt can lead to high blood pressure which can lead to a variety of different health conditions including stroke and coronary heart disease. These diseases combined, claim the lives of millions of people globally, and costs the NHS, as well […]
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NEWS: Making Conversations Count for All – Benefits of improving delivery of smoking cessation interventions for different socioeconomic groups
Today, Cancer Research UK has published a new report ‘Making Conversations Count for All: Benefits of improving delivery of smoking cessation interventions for different socioeconomic groups’ which includes modelling conducted by HealthLumen. This builds on the previous 2020 report, which aimed to estimate the burden of active smoking related disease in the UK and quantify the health and economic […]